These are the symptoms of Mast Cell Activation Syndrome

Do You Have These

I got diagnosed with POTS back in september and ankylosing spondylitis in august I did a mast cell workup as well (still don’t have any word of what the results are for that) and I thought it was all a scam because after 2 years of fighting the drs for a diagnosis other than anxiety I got these two conditions that I never heard of just seemed off to me but here i am now wheelchair bound at 26 years old no income was hospitalized and put in a nursing home for almost a month and still going through hell and back because “not enough specialists know enough on how to treat it”

I get pinpoint rashes, skin writing, sometimes hives and itching, rapid weight loss, fatigue, tachycardia, blood pressure spikes and drops, hypoglycemia, arthritis, weakness, digestion issues, intense pressure headaches that ive never felt in my life its nothing like a migrane or standard headache, body temperate doesnt regulate correctly, dry mouth eyes and nose as well as taste and smell issues, acne, easy brusing, and the list goes on and on but every blood test and mri or ct scan always comes back normal so they dont considerate it life threatening and send me home everytime

Beneficial overview. Based on experience and other people's testimony, probably 98% of all doctors have little to no (and I mean no, none) knowledge of this. As in they think patients are making up the symptoms and the term. So, it's nearly impossible for most people to get diagnosed at this point in time, (though it's improving slowly) patients are ignored and told to see...a shrink. So yes, videos raising awareness...help.

this is me…migraines POTS unexplained heart racing or palpitations , skin rashes , struggle w temp changes, pure exhaustion 24/7, IBS, dizziness on the daily, chronic sinus issues, joint pain starting in my 20s, extreme water retention, swollen lips eyes hands so on and so on no one knows why I’m so sick!!!! Wow I am blown away by this as I have an answer now and can bring this up to local doctor!

You’re the first doctor that’s explained symptoms aside from the predictable allergic symptoms. Thank you!

This is so helpful. I had chronic “utis” that strangely had no bacteria on testing. Thankfully I had a thorough urologist who discovered it was actually a problem with mast cell activation. The relief to finally have a cause for the pain was incredible.